Warrenpoint stroke survivor adds voice to Lost for Words campaign

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Monday, December 11th, 2017
Community, News

Warrenpoint stroke survivor Shane Fearon is one of the thousands of people living with communication difficulties after a stroke.

Shane has aphasia – a common communication difficulty after a stroke. Aphasia can affect a person’s ability to understand, speak, read, write and use numbers; however it doesn’t affect a person’s intelligence.

 

 

Shane is married to Rosaleen and has 3 children – Aoife, Connor and Orla. Shane had his stroke on 5 August 2016 when he was only 42.

He was home alone at the time. He noticed his leg didn’t work properly – but didn’t think anything of it and thought “don’t worry I’ll be ok in a bit”.

Speaking to Newry Times, Shane explained, “When I woke up that morning I had a sore head – I phoned work and asked for the day off. Sometime later I thought I would be ok but when I went to get up from bed I realised my leg didn’t work. I thought I would try again in 15 minutes but it hadn’t gotten any better.

 

 

“My wife had gone to the shops so I was home alone. I had to somehow get up a flight of stairs to get to the telephone to call 999. I noticed my speech was affected and I couldn’t talk but the ambulance arrived very quickly. Looking back I know I should have taken action quicker but I didn’t realise I was having a stroke.”

Shane was taken to Daisy Hill Hospital and then immediately transferred to the Royal Victoria Hospital for a brain scan. The journey to the RVH was not ideal as there had been an accident on the main road and they had to take some very bumpy and winding back roads.

When he arrived at RVH he went for a brain scan and then transferred back to Newry.

 

Shane continued, “I didn’t really understand that I had a stroke until around two weeks later. Initially my stroke affected by right arm, right leg and face but now my biggest problem is with my speech.

 

 

“Outwardly I look fine but I do have difficulties that you cannot see. I understand most things but sometimes I have to think very hard about words. Chat is very important to me but it can be difficult to talk with family and join in conversations the same way I used too as I cannot remember the words – they get muddled.”

Shane received support from the local Community Stroke Team and says that while the support that he received from them was excellent; during the breaks when he didn’t have any Speech and Language Therapy, he felt that his speech was getting worse when he didn’t have SLT.

Before his stroke, Shane was a Structural Engineer and held a senior position as an Associate Director. Due to his stroke he was unable to return to work in the same manner but says that his employer was excellent in enabling his return to work.

Shane says, “Six months after my stroke, I went back to work two days a week then in August 2017 I went up to four days a week. I work Monday, Tuesday, Thursday and Friday. The break in the middle means I am able to recharge and get ready for the rest of the week.

“I’m now working in a more junior position but I’m glad that I am working. Through the Civil Engineers Benevolent Fund I was able to receive funding for a private Speech and Language Therapist which meant that I could continue to improve my speech at home.”

 

 

In June 2017 Shane joined the Stroke Association’s SLT Communication Plus programme in Newry run by Speech and Language Therapist Catherine Lowry. The SLT programme is partially funded by the Southern Health and Social Care Trust.

Shane continued, “The group I joined was small – there was only 4 people as well as me in the group. We all have different levels of aphasia so this small group enabled us to have good conversation and good chat with other stroke survivors who had been through similar situations.

“Prior to this group I didn’t really talk to anyone else who had aphasia or speech problems so being able to do this really helped me. The group made me realise that I wasn’t alone. I’m very grateful to the support of the Stroke Association and to the SLT group for helping me in my recovery.”

The Stroke Association’s Lost for Words campaign aims to raise awareness of the challenges stroke survivors with communication difficulties can face, and help and support available.

Catherine Lowry, Speech and Language Therapist at the Stroke Association said, “After a stroke around one in three people like Shane have difficulty communicating.  This can be both terrifying and isolating. But with the right help and support many stroke survivors are able to find new ways to communicate and in turn can rebuild their lives once more.”

The Stroke Association’s SLT Communication Plus programme aims to increase participants’ knowledge and awareness of stroke and associated communication difficulties post stroke i.e. aphasia.

 

 

The programme supports participants in improving their communication skills for everyday living.  It also explores the changes and impacts of living with a long term communication difficulty and encourages participants to consider options and goals for the future. “

More than 350,000 people in the UK have aphasia, a communication disability which can be caused by stroke. The Stroke Association is urging people to show their support for stroke survivors who are lost for words and make a donation. For more information, visit www.stroke.org.uk/lostforwords.  

For more information on the Stroke Associations SLT Communication Plus programme, contact the Northern Ireland team on ni@stroke.org.uk or call 028 9050 8020.


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2 Comments for “Warrenpoint stroke survivor adds voice to Lost for Words campaign”

  1. Ciaran

    SHANE YOU ALSO HAD GREAT CRAIC AT THE REUNION LOL

  2. Ciaran cahill

    Great positive story

Comments are closed

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