‘Everyone has a right to the best treatment and care’ – Wells

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Monday, November 10th, 2014
Health Minister Jim Wells has said that everyone has a right to expect the best treatment and care that the Health Service can provide.

Health Minister Jim Wells

The Minister was speaking as he launched a consultation on the draft Northern Ireland Rare Disease Implementation Plan. The draft Plan sets out a framework to support continued action and new developments to tailor how we provide services for people with rare diseases over the next six years. Speaking at the Northern Ireland Rare Disease Partnership (NIRDP) Autumn Event, Minister Wells said, “Everyone has a right to expect the best treatment and care that the Health Service can provide, whether their condition is one of the many conditions which are known under the collective banner of ‘rare disease’ or one that is more prevalent. “We need to address the needs of people living with a rare disease, regardless of their age, where they live or their circumstances. The UK Rare Diseases Strategy aims to ensure that patients with a rare disease are not disadvantaged,” he insisted. The Minister continued, “As Minister, I am committed to ensuring that everyone who accesses our Health and Social Care system receives the best possible level of care. “We all want to see improved outcomes for those living with a rare disease, whether they are a patient, family member, carer or member of the broader support community for rare disease patients. “I see this Rare Disease Implementation Plan as the next stage of our journey to improve rare disease services in Northern Ireland and I would urge all stakeholders to respond to the consultation, so that my Department can be assured that the proposed implementation plan meets the needs of those living with a rare disease.” The consultation will run for 12 weeks, closing on 19 January 2015 and is available at http://www.dhsspsni.gov.uk/showconsultations?txtid=74325
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